Do You Think I Have Sarcoidosis? Here Are My Symtoms
Monday
Nov 16, 2009
Last year, maybe the fall, started feeling like the left side of my chest had some pressure. Seems as though it kept growing, its like a brick is sitting in my chest. When i breathe, it feels like most of it is from the right side, and the left side only gets about half the air its suppose to get. As a result of this, i went into the hospital in january of this year, because i felt i could not breathe at all really, and started gettings these flutters in my chest i thought i was having a heart attack. Turns out my heart is fine, and the breathing problem was reduced when they gave me a liquid steroid through I.V., while there for 4 days. They put me on prednisone, and after finishing the bottle, that helped but didnt take the problem away. Again , and still to this day 8 months later, when i breathe, feels like most are from the right side, although im used to it and it doesnt bother me, its sstill not right. The cat scan came back that my lungs were clear, even though they said a slide malfunctioned. Few months back, i went to a family doctor, who really didnt do anything. He gave me a steroid inhailer, and that didnt work, then i went to a pulminary disease doctor, who couldnt figure it out, and she gave me more predinose, she suggested i see a rootologist i think it is, and i havent gone yet.
Another problem i have been having is that i took something i was allergic to back in march, and i broke out in hives, when the hives went away, and the itching stopped, i developed these dark circle patches on my skin. Today, they are still there, one on my forehead, my ears have dark patches on them, 4 on the back of my neck, one on my back, and about 15 in total on both arms. I have been on a steroid cream for about 2 months but nthing has changed. So since march i have had these circle patches everywhere and nothing has changed.
Another problem is now, it has been hard for me to breathe because my esophogus has allot of tissue build up, and the hole where the food goes down is not its normal size, its getting smaller because of whatever. My tongue is very large, and the tip of my tongue sitx on the top inside of my mouth. Is that normal? I dont know if its called the tonsil, but that thing that hangs down in the middle ih teh back is very long, and it sits on my tongue. Seems like im swollen back there, and also i have alot of saliva build up. I am going to an ent monday morning.
Also, the left side of my jaw feels back by my ear, where the top and bottom meets, seems to be swollen it doesnt feel normal .
Also, before all of this happened, i was having alot of cold sweats. Like daily i would wake up and my pillow is soaked.
My vision is pretty ok, its not clear, i can see close, but far things on the tv like the words are hard to see. I have to squinch, but i make it. I had glasses which worked fine but i lost them gotta get more.
Other than that, i feel fine, like im neve sick, im never tired, actually seems like this: when i eat mcdonalds, the next day im tired, and i eat out alot, but when i eat good frutis and vegatables, i feel so great the next day i feel like a million bucks, at least outside these other problems.
Now, from what i have been reading, the symptons are everything i said. Your jaw hurts, you develop rashes, your chest is short of breathe, and others.
Do you think i have sarcoidosis?
Oh yea, i also had my wisdom tooth pulled, and 4 root canals over the last 2 months. I have been on prednisone for that also, but im out now.
ITs been hard for me to breathe because my saliva seems to keep me choaking at night, and the anxiety from all this drives me crazy.
Rodney
Comments
Sfsdlkj S
November 16th, 2009 at 9:39 pm
You definitely have several textbook symptoms. Since sarcoidosis is one of many auto-immune diseases, the prednisone helps, I’m sure. There are many new therapies as well. What you need is a firm diagnosis and proper treatment. This disease can easily be fatal. Berney Mac just died of pneumonia, a complication of the sarcoidosis he suffered from.
While no one on YA can say for certain what you have, your symptoms sound serious. You should see a specialist right away before the disease (whatever it is) does any more permanent damage to you. If the doctor can’t say what it is, see another one. Rheumatologists are often familiar with auto-immune diseases (if you can’t find one who specializes in sarcoidosis).
At any rate, you should seek professional medical help immediately.
Good luck, hope this helps somewhat…